Love and dementia

Written by Active Minds on Friday the 14th of February 2014.

News

Black and white photo of a happy couple on a fairground ride

On Valentine’s Day, a day to love and be loved, we take a look at some links, articles and videos which may interest those on a journey with best-friend, loved one or spouse who has been diagnosed with dementia

 

A better life with dementia

A 2 year study (2010-12) by the University of Bradford looked into how married couples living with dementia make decisions on a daily basis.

http://www.esrc.ac.uk/news-and-events/features-casestudies/features/26158/a-better-life-with-dementia.aspx

“It’s important for people with dementia to be supported to allow them to make decisions where they’re still able to. Having dementia doesn’t mean you automatically lose your decision-making ability – this needs to be considered on a decision-by-decision basis. Professionals and carers need to facilitate the involvement of people with dementia in decision-making as much as possible.” – Dr. Geraldine Boyle

Dementia dogs for couples

http://www.bbc.co.uk/news/health-23270822

Dogs have been taught to respond to alarms and bring medicine pouches, to nudge their owners to go and read a reminder, and to encourage them to get out of bed in the morning.

(visit Dementia Dogs to find out more)

Stories of other couple’s journeys

“The hardest part for him has been coming to terms with his wife suffering a diagnosis out of her control.”

http://www.stuff.co.nz/national/health/9164885/Couples-journey-with-dementia

“It took us a year to adapt to our new circumstances and those long middle-of-the-night conversations and tears are still fresh in my mind.”

http://www.dementiachallengers.com/couples-edith-and-dennis.html

Ladder couples – working together as a pair

A great article about couples leaning on each other, like the uprights of a stepladder, propping up each other’s limitations and holding their lives together as a single unit while the rest of the family or the community provide extra cross-struts of support.

http://www.dementiablog.org/ladder-couples-working-together-pair/

Beth Britton writes about caring for a best friend/ partner with dementia

http://d4dementia.blogspot.co.uk/2013/01/in-sickness-and-in-health.html?m=0

Art imitates life, in a play about dementia

Watch young actors perform a parable of love and affection.

Also a Mirror is a couple’s true story about their life journey. They speak of their experiences, and the play.

http://www.youtube.com/watch?v=sNi35JgRvzw

“I think I was very impressed with the way that people so young could penetrate the spirit of us at a younger age but also later in life.”

“I’m not terribly fond of the term ‘dementia’. I just wish that there were a suitable single word that would explain the syndrome. I much prefer the term ‘memory impairment’. I think that’s more accurate, you know – it doesn’t have the stigma attached to it that dementia has.”