Written by Active Minds on Tuesday the 9th of May 2017.
If you or a loved one are diagnosed with dementia, it can be an incredibly daunting and lonely experience as you start to come to terms with the diagnosis and how it will affect your life. But you don’t have to go through it alone, there are organisations out there to help you understand your diagnosis, and support you and your loved ones on your dementia journey.
Dementia UK is a charity that provides dementia support for families through their Admiral Nurses. Admiral nurses are fully trained to work alongside people with dementia, and their families: giving them one-to-one support, expert guidance and practical solutions. They work in different care settings: in the community, in hospitals, in care homes and in hospices, and they maintain the highest level of practice, supported by Dementia UK.
The Alzheimer’s Society is a valuable source of information, advice and support for people living with dementia and their families. They run a number of dementia support programmes, such as The Personal Choice Programme which highlights the importance of personalisation and how having choice and control over your own care and support can help people with dementia to live well. They also run a forum called Talking Point, an online community for anyone affected by dementia.
Guideposts is a multi-disciplinary social care & mental health charity, focused upon people and their wellbeing, this ranges from mental health issues to age-related concerns such as dementia. The charity offers; Care & Support services, Information Advice & Guidance teams, Independent Living Support projects, in addition to running and sign-posting suitable adult activities and events.
YoungDementia UK offers support and guidance for anyone whose lives have been affected by young onset dementia. They also have an up-to-date list of services across the UK catering for the needs of people with young onset dementia, as well as a fantastic resource section on their website, where they have compiled a number of young onset dementia blogs, books and websites.
AT Dementia provides information on Assistive Technology that can help people with dementia live more independently. They have compiled a self-help guide to help people living with dementia and their families understand the different technologies available. You are asked a series of questions, and then depending on your answers, you are given advice, tips and links to useful products and websites.